Rare Disease Day

Rare Disease Day

The last day of February is International Rare Disease Day, which seeks to raise awareness of those living with rare diseases around the world.

Although specific diseases can be extremely rare, as a population 1 in 20 people may live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed.

We are marking the day with the release of the updated version of our own Rare Conditions handbook.
This provides clinicians with a brief synopsis of 20 medical conditions, which are so rare they may only come across them once in their career, such as: Autonomic dysreflexia, Diabetes insipidus, and Long QT syndrome.

Each disease is described along with the symptoms that a patient might present with, together with the appropriate pre-hospital care.

The updated guide can be downloaded from the Publications section of the EAST24 website:
Download Rare Conditions Handbook
Download to Toughbook

Find out more about Rare Disease Day at: www.rarediseaseday.org

Published 28th February 2019

 

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