Help Lisa fundraise for children’s liver disease

Lisa Barwell and team

I have been involved with the Children’s Liver Disease Foundation (CLDF) since August 2012, when my daughter Sophie was diagnosed with the liver disease Biliary Atresia.

She had surgery lasting nine hours at just six weeks old and, thankfully, she currently enjoys good health. However this is a lifelong condition requiring monitoring and the high probability of a liver transplant in the future.

In the past I have held events to raise money for CLDF and to raise awareness of childhood liver disease and the importance of organ donation.

Strangely, I feel the diagnosis has had a positive impact on my work as a Paramedic, as I empathise with parents of sick children and I don’t worry when I go to patients who have rare conditions, as I know that they (or their parents) will be experts in that condition.

The staff and management team in South West Essex have always been tremendously supportive. For example, when Sophie has been admitted to hospital, or had appointments, but that support has just reached a whole new level!

In the crew room at Basildon late last year, Paramedics Sam Gilbert and Toby Langley were discussing their plans to cycle from Land’s End to John O’Groats, with three of their friends and mentioned finding a suitable charity to cycle in aid of. I immediately suggested CLDF and without a moment's hesitation, they agreed!

So far, we have:

  • Held The Big Yellow Party on 3rd March
  • Started a JustGiving page
  • Held cake sales at Basildon and Thurrock Ambulance Station
  • Raised money on a Facebook page.

Staff from the South West have so far donated in excess of £300! Toby, Sam and I were really touched by how many staff gave up their time to attend the Big Yellow Party; many of those also helped to show children round a DSA (Double Staffed Ambulance) and give them some First Aid coaching.

The guys plan to begin their bike ride on 1st June, while myself, Sophie, my husband and son Ethan will be in Land’s End to give them a warm send off.

If you would like to donate, please visit our JustGiving page. Thank you. 

Lisa Barwell

Published 11th March 2019

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